Posted: Sat 10th Feb 2024

Wrexham Police FC charity match to help raise vital funds for Louis and his family for people living in or visiting the Wrexham area
This article is old - Published: Saturday, Feb 10th, 2024

A charity football football next month will help to raise vital funds for a local boy born with a rare genetic condition and his family.

Louis, an avid Wrexham AFC fan, was born with a rare genetic condition called TUBA1A.

He also has epilepsy and cerebral palsy.

Louis suffers from painful leg spasms, has limited mobility and is reliant on a wheelchair.

A JustGiving page has been set up to raise money for his family, who need £40,000 to help them adapt their home.

His family wrote: “Our four, nearly five year old son, Louis, was born with a rare genetic condition – TUBA1A.

“He has epilepsy, cerebral palsy and a naughty sense of humour!

“He suffers with painful leg spasms and has very limited mobility. Caring for Louis as he continues to grow, is becoming more and more challenging for us as parents.

“The home we have and love, CAN be adapted so Lou can move and roll around independently. And so, us as his parents, can meet his everyday needs.

 ”My family have explored all options available to us including moving house. Moving house moves the problem and there are no ready-made, disabled friendly, affordable homes.

“We urgently need help to make adaptations to meet Louis’s needs in the house we want to remain in.

“Sadly, the local authority has rejected funding due the costs of the project exceeding the statutory limit offered by Welsh government.

“This has devastated our family. Initial plans began in 2021 and we have waited and waited, hoping, and expecting this to be approved.

“We are left with no other options other than to either fundraise or borrow money.

“Our home is becoming more and more unsuitable without being adapted. We cannot borrow the amount of money needed so we ask for your help to support Just4Children.

“Currently, the need for constant support in the home, has a detrimental effect on Louis’s happiness; he is frustrated by his dependence on others; he can not access his bedroom, move around, and play like his brother and friends.

“By helping fund adaptations, you are helping Louis stay in a safe and happy home with our family.”

Cumulatively, donations to the pages have now surpassed £17,000 – with a £10,000 donation made by Wrexham AFC owners Ryan Reynolds and Rob McElhenney.

Dorking Wanderers FC owner Marc White also made a generous £1,000 donation to the cause earlier this month.

On March 23 Wrexham Police FC will contest a friendly match at Colliers Park, Gresford in support of Louis.

Wrexham Police FC founder, Sgt Dave Smith, said: “When I was told about Louis’s story it really moved me.

“He is currently unable to able to access his own bedroom and other rooms within the family home. We hope to raise as much as we can to help Louis and his family.

“I’m so very grateful to everyone who has donated and the support we’ve received so far. Every penny raised really will help make a real difference.

“We’d like to thank Ryan and Rob for their support. The generous donation will help make a real difference for Louis and his family.

“We’d also like to wish them a happy third anniversary of owning the club, they are both very much part of the fabric of Wrexham and have done a great deal of good for the club and the community. They truly are incredible people.

“The support and very generous donation provided by Marc White at Dorking was also fantastic, we’re so grateful.”

In their fixtures against community sides to date, the off-duty Wrexham officers have helped to raise more than £30,000 for charities, hospitals and local initiatives.

You can donate to the Justgiving page and support Louis and his family here.

Picture; Justgiving

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